Monday, August 31, 2015

Super Macsen


Macsen's appointment went well today - chest X-ray was "beautiful," his breathing looks good, he's drinking milk again, his chest tube suture was removed and his O2 saturation was 90!! We get to lower his dose of his 2 diuretics and when we asked when we need to come up next his cardiologist said the most beautiful words "not for 3 more years (if he continues to do well)!" Say what? He will still need to see his Pensacola cardiologist in the next week or so and several times/year but that's easy. So excited. Post Fontan life already sounds amazing!

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