I had all Macsen's records sent to the Mayo clinic to see if he could be eligible for inclusion in an ongoing research study to strengthen his single heart ventricle. To be eligible he had to show poor heart function and I thought in light of how he's been looking - more energy, less blue, Sats in the low 90s - that he would be deemed ineligible, too healthy. So I was shocked this morning to learn after reviewing all his records Dr. Quereshi would like him to participate in the study.
It is a big undertaking with several trips to Rochester, NY, MRIs with sedation, the marrow aspiration and a heart cath. But it could result in better heart function for M - maybe he will finally start growing if his heart isn't working so hard. Maybe it will put off future heart failure for a while. And maybe it won't help at all and will be a painful, traumatic, expensive and possibly even life threatening (heart caths are no joke ) ordeal Macsen is old enough to remember. We are discussing everything with his cardiologists and with our families but appreciate prayers to help guide us on the right path Here is a link to more information on the Mayo Clinic's stem cell trial
