Wednesday, November 9, 2016

New Neuro

Macsen got a new neuro. I like her. She's in Pensacola and was recommended by his cardiologist. She diagnosed him with hypermobility - his joints all bend past the point where they should. She said this could most definitely be the reason he is having so much knee and ankle pain. It could also be why he can't chew very efficiently and why his speech is such a struggle. She wants us to get a PT and OT evaluation in addition to seeing an Apraxia expert in Pensacola. She also wants to havea sleep study done so we can maybe find out why Mac still wakes so much at night - and also to rule out any possible apnea. So we have all those wheels in motion now - on lots of waiting lists- and we have a follow appointment in February.

Tuesday, November 1, 2016

Happy Halloween!!!


Macsen loves Marshall from Paw Patrol and he was so adorable in his costume. He sang the theme song to everyone  ("Paw Patrol, Paw Patrol. We'll get there on the double")and ran around all night. He did need to be carried after big spurts of energy bc he would wear himself out. He is learning new words and phrases at an amazing rate now. We are so proud of him.