Our Story

I wrote this soon after we found out about Macsen's heart at 20 weeks pregnant.

Deep Breath.....

Since 2000 when I met my husband Aaron I've felt like my life was destined to be wonderful. The first day he saw me he went home and told his roommate Brian that he had met his future wife. And since then we've walked down many paths, met many people, made thousands of decisions that just always felt right. Crazy decisions like moving to Alabama, applying for a job as an   apprentice helicopter mechanic with no experience, starting my own photography business, and lastly deciding to try for a boy after having 2 wonderful and healthy girls.


We are indeed going to have a boy - my husband said he never doubted it. He even wore a blue shirt to the 16 week ultrasound and was texting everyone we knew before we even left the lobby:)But at 20 weeks, while getting our ultrasound we were confident would say everything was wonderful, just like with our girls, the ultrasound tech paused and became quiet. She said she couldn't get a good view of the baby's heart and she was just going to get someone to help her. When Kay came in I still thought everything was fine and fully trusted that the first tech had needed a little help. Kay looked for a while and she talked to my girls who were getting impatient with the unusually long ultrasound. When we later saw the Doctor he told us about normal topics discussed at ones 20 week appt and then he said the baby may have something wrong with his heart - something he may grow out of or something that might need surgery. We still weren't worried - everything always worked out for us.


Before our Level II ultrasound with a specialist the next week I started to get nervous. We had never had one of those - had never needed one. We talked and played with a sweet little girl in the waiting room while we waited. We joked and laughed with the ultrasound tech. We were even smiling when the doctor came into the tiny overheated exam room. But what he told us has changed our lives forever and at this point it's been less than a week. I just know we'll never be the same.


He said the baby has Hypoplastic Left Heart Syndrome - or small left heart. That our little man will need lots of surgeries...


Boom!


I've created this blog to help keep family informed, to help people praying for us and the baby have a name and a face to pray for, and to help keep me sane.

  

Macsen Gray Miller

The name Macsen is Welsh like my grandmother. It means "The Greatest" - how can anyone argue with that? And we chose "Gray" as a middle name because one of our most loved spots in the world is Grayton Beach, the place we were married in 2004.