Sunday, December 25, 2016

Monday, December 19, 2016

Sleep Study #1

All wrapped up for his sleep study
Getting settled into the sleep room with Daddy
All done at 4 am. Poor Daddy wasn't done sleeping though

Macsen's new Neuro suggested a sleep study bc Mac still wakes between 2 -100 times per night. Our new divided sleeping arrangements have helped one of us get a better night's sleep every other night (sometimes 2 nights in a row when one parent is feeling more rested or generous then the other lol.) 
 Aaron went with Mac which I was so thankful for. It was all the way in Pensacola (though if we have to repeat it ever we will try to use a sleep center closer to home.) Macsen did really great with all the wires and stickers (he HATES having stickers on him.) And Aaron said he slept better then ever - of course.Aaron had to sleep in a Lazy Boy and when Mac woke at his normal 4 am the techs came in and unwired him. After all that is was after 5am and Mac wasn't going to go back to sleep so they left. thankfully the Chik fil A was open and M got to play on the equipment while Aar ate breakfast. Macsen is not eating well again. He is no longer gagging - just seems completely uninterested in eating. Sigh. Later that morning Aaron brought MAc to the cardiologist's office to listen to his lungs and heart - he has been making this weird grunting noise for over a month and I just felt better having his card look him over before they came back to Alabama.
We are still waiting on results from the sleep study.