Working in feeding today. That is one of main milestones -weight gain- before we can be discharged. Of course today Macsen decides he doesn't really want to eat :( 5 minutes here and there isn't going to cut it. With his IV off the pressure is on to make sure he's taking in enough. Pray for a hungry night!
What an amazing journey all of you are on. Thanks so much for keeping up the blog. Praying for Macsen to be a hungry little guy, for continued growth and healing and for both of you to get good sleep. Also saying prayers for those you mentioned earlier who are needing prayers.
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