Better day

Just got his other umbilical line out. He bled quite a bit:( Heparin didn't help. He has downed a few bottles today. Yay! And is currently sleeping in his dad's arms. We are running on fumes and will eventually need a good night's sleep... It's tough to leave your newborn for an entire night - especially when he has just had major surgery. And sometimes the night nurses just don't seem as dedicated. Aaron gets furious when at 2 am and we check on M and the night nurse is playing dance music in the pod and every light is on. Bad for your circadian rhythms. We love most of the nurses here. Today I watched Steven our nurse for the day sift through the blankets to find the softest one for Macsen's bedding. So sweet. ........
Had a nice dinner at the Ronald McDonald house. Love that place!! It has made this time in our lives a little bit easier to navigate. Dinners every night put on by various groups of amazing people. Crafts and shuttle rides to the hospital. So great! I put the girls to bed and fell asleep with them. I feel so much better - snuggling with my girls and getting an hour of good sleep...ahhhhhhh. Got back to the hospital in time for rounds. Macsen had a great day and is now down to just his PICC line with his heparin and they are going to switch him over to oral aspirin and oral Zantac tomorrow. These babies have a lot of reflux. Ii can sense the light at the end of the tunnel and I know our journey has been so great - compared to what we were preparing ourselves for - because of this wonderful hospital, support team, and all the prayers.
On that note I would like to ask that you all pray for our new friends the Gormans. Their little man just had the 3rd surgery and is struggling. Please pray for strength for Little Caelen and his parents Katye and Martin. They have been truly tested on their journey and are an amazing family.