Our day of testing at CHOP is over. Macsen was all smiles and sweet eyes at first but when it came time for his echo he was over it. I think he missed his beautiful echo administrators in Pensacola and was not impressed with the 2 docs that were holding the wand today. He sucked it up though with a little help from our flashing whirling light wand and iPhone videos of his sisters singing to him. He also enjoyed watching a riveting 60 second clip of himself in the bath. The echo revealed that they weren't sure where that extra vein of his is going - if is actually shunting more blue blood into his heart which isn't good and it will need to be blocked/removed or if it is doing something else. So, a cath is needed. They will also look for collateral vessels that can pop up and might need to be blocked off as well. His cath dr will be DrGlatz who is apparently extremely skilled at caths and is highly recommended by all my heart mama friends. Very reassuring to get that from them.
So now I'll go back to sleep - up pumping for Macsen. He will have to stop eating at 7:30 and we bring him in at 9:30. Since he still eats every 90 minutes or so those last 30 might be a little tough. He'll be put under sedation - hopefully he won't have to be intubated - and the whole thing should take around 3 hours.
Praying all goes smoothly - thank you so much for keeping us updated. Lots of love and positive energy to all of you. He is just precious! Martha.
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