Mac is hanging in there. He’s still in a lot of pain but the opiates make him miserable - irritable, itchy, and or comatose so we have transferred him to Tylenol but it’s not quite enough. He is finally eating though since we took him off the big meds. This morning first thing he had me take him to the food court in his little wagon to get a spinach wrap with guacamole and turkey. He ate almost 1/2! He’s getting so many diuretics and he’s lost so much weight he’s starting to look a little skeletal 😞 his eyes are sunken and dark.
I think they may start weaning his milrinone tomorrow or the next day and it could take about a week. But on the weekend the hospital seems to go into a holding pattern until the weekday staff comes on Monday so it’s hard for us to make any plans for the coming weeks.
His heart rate has come down and his oxygen has gone up which are both really great. We hope to see some improvement in his function when he gets his next echo.
I think they may start weaning his milrinone tomorrow or the next day and it could take about a week. But on the weekend the hospital seems to go into a holding pattern until the weekday staff comes on Monday so it’s hard for us to make any plans for the coming weeks.
His heart rate has come down and his oxygen has gone up which are both really great. We hope to see some improvement in his function when he gets his next echo.
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