Playing with his sisters on the balcony today. We are supposed to be making him run around so they can see how his heart reacts. His sisters do a great job with that❤️ Mac had an ok night - 2 potty visits, 4 blood pressure checks and a blood draw all before 5 am.
His bp dropped pretty low overnight. There is talking of adding in a 3rd diuretic. And a lot more talk along the lines of “it’s time to commit to transplant before we wait too long and he declines too far.” There are 3 other kids waiting on our floor - one since January who is 15, one since August who is little like Mac, and a third who has been waiting, living at the hospital since June.
His bp dropped pretty low overnight. There is talking of adding in a 3rd diuretic. And a lot more talk along the lines of “it’s time to commit to transplant before we wait too long and he declines too far.” There are 3 other kids waiting on our floor - one since January who is 15, one since August who is little like Mac, and a third who has been waiting, living at the hospital since June.
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