Macsen - out!

Discharged!! Though the doc urged us to stay close to the hospital tonight. We have to keep an eye out for fevers, any grossness at his cath sites when we take the dressings off tomorrow. He has been very puffy from the sedation - couldn't even open his eyes he had so much fluid-and we are hoping a dose of Lasix will clear some of it up. He was also very very junky when they sedated him - they suctioned lots of gunk out of his lungs. Hopefully it is not a sign he is getting sick.

His cardiologist came to talk to us and she was reassuring. The good news is his heart numbers look better than they did before his last surgery. His tricuspid looks strong and the patch sewed on during surgery #2 is only leaking minimally His ejection fraction isn't good though - it measures how well his right ventricle squeezes- what percentage  of blood it is ejecting with each squeeze. A good number is anywhere from 50-70 so Macsen's EF of 30 is worrisome. His ventricle is stiff and just isn't working very well. So the plan is to try meds to help his heart squeeze better. And then a tentative date for surgery Summer 2015 if the meds seem to help him. They are still evaluating parts of the MRI. We hope to get more heart info and some information on his lymph accumulation. 

Tonight and for the next few days we hope to get lots of rest. None of us have slept well in 5 days and with the stress of everything we are just exhausted. Looking forward to the king size bed at my sister's house and seeing our girls.