Chiari?

Based on Macsen's spinal MRI today his neurologist DOES NOT think he has chiari malformation. The fluid around his brain is flowing freely and unobstructed. It is great news to know he will not need brain surgery - fantastic news. He also felt Macsen has all the precursors for speech - it's just going to take lots more work. Definitely doable. 

So great news so far

He is still getting his cath. Will update when we know something

Macsen's auntie G is here waiting with us. She was so great during his appointments/consultations yesterday bc she played with him so Aaron and I could direct 100% of our attention to the Dr. 

***Update at 11. Cath is going well. Another update at 12