Macsen has kind of exploded lately though. According to my measuring system, which consists of sitting Macsen on the counter to see if his head touches the upper cabinets, he has grown half an inch. He is almost 26 lbs too! I am not sure if it is the appetite stimulant med he is on or the fortifier I am adding to his milk but something is working. He has been going through growing pains at night too - crying out and rubbing his legs. He wakes at least 5 times/night and I rub his legs or rock him.
He is also trying to eat more real food though 99% of it still gets chewed up and spit out. Last night he chewed up 1/2 a meat ball and some rice noodles. This morning he swallowed about 1/2 a gogurt tube. Slow but progress. I still haven't turned in his paperwork for the intensive feeding clinic in Atlanta. I just don't know how we will swing that just yet with the girls in school and Aaron working.
A company called Orgain that makes organic nutritional shakes mailed us 2 boxes of samples of their shakes - so generous- in the hopes that's Macsen would like them. 😔 Not looking good though he did take about 5 sips of the chocolate one. Vanilla was an immediate no way.
Sigh. And after 2 years of running 4+ times per day I wore out my breast pump. It started loosing suction so I opened it up and the inner membrane is popped. Not sure how that happened or if it just was its time to die but that stinks. Those things are not cheap and after 2 years I hate to buy a new one now. I have a really old one I am using now - grateful it is still running.
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