He's so beautiful

Sorry I have been so terrible about updating. It is hard to post when you're holding a baby all day! That's right! We are getting some major bonding time this week while we wait for everything to happen. Macsen is very stable - still breathing room air. Only 1 IV with his prostaglandins to keep the ductus open in his heart. His umbilical line never worked unfortunately so they've had to put it in his hand. He's also an impossible "stock" meaning even the expert team of vampires they have here give up several times/day. They just can't get his blood to flow without rupturing his blood cells. So today they are scheduling a PIC line which should be more secure - just scarier b/c they put the line in an artery.
His oxygen levels are trending up - he's been upper 90's and up to 100. Sounds good right? Nope. Means his lungs are getting too much blood and his body not as much. They'll keep an eye on it but because his heart rate and blood pressure are good and steady they aren't too concerned at the moment.
He's been nursing pretty well. Such a different experience than with my girls - feed them when they cry and look hungry. Here I can't wait for him to let me know he's hungry. I have to make him eat. Not easy when they make him drink salt for his low sodium levels which makes him puke. He also has a pretty mighty gag reflex.
So we are not having our Norwood surgery today. Phew! We've been told Thursday was the day and then boom maybe tomorrow. I was not prepared to hand him over just yet - this week has been an amazing respite from what I have been imagining for months. It's been a gift to hold and love him and I am so grateful.
They've just come in to let us know they'll be taking him soon - putting him under sedation for his PIC line. His first procedure. Here we go:(