Tuesday, April 26, 2016

A CBD Miracle

Anyone who reads this blog and knows our family knows of Macsen's ongoing struggles to swallow solids. Four feeding therapists, 3 neurologists, 3 MRIs, 4 gastroenterologists, an upper GI scope, and 2 swallow studies have never been able to figure out why he can't swallow. They also haven't been able to really help him eat more than a few nibbles despite 2 years of biweekly feeding therapy sessions. I have tried every spoon, vibrating toothbrush, chewy tube, mouth exercise, and feeding technique I could find. I have talked to hundreds of other parents whose children also couldn't eat hoping to glean some insight into what could be going wrong. I have read every book and medical study I could find to try to find a solution.
Several months ago I started looking into CBD oil - cannabinol oil. It has all the healing properties of cannabis but none of the mind altering compounds marijuana has. It is legal and can be ordered on Amazon. I ordered a tiny bottle for M for $60 with very little hope it would help- we had tried almost everything, short of electric shock treatment, and I was used to being disappointed. 
I gave it to him right after opening the box - 6 drops on his tongue and he said "Mmmm. Yummy." 3 hours later as our family sat down for dinner, Aaron and I incredulously watched as Macsen put bite after bite in his mouth, chewed, AND DIDN'T GAG when he tried to swallow. Aaron looked at me and whispered to me behind his hand " Are you seeing this? What is happening?!!!" And Macsen has asked to "EAT" almost constantly since we started using it. And the other amazing things are what he is eating - not purées or soft foods - he's asking for corn dogs and meatballs, cracker sandwiches with pepperoni and cheese(he just polished off 4.) And the volume! He doesn't just eat 2 bites of the corn dog - but the whole thing!! This is an overnight, almost instantaneous change and I know it is the CBD oil. I am so grateful that we found this and our prayers were answered. Our lives are all so much better since Macsen started eating - my constant stress and worry about why he couldn't eat and what else I could do to help him are gone - poof! It truly is miraculous. This is the oil we bought. It has been a Godsend for our family.