Thursday, October 2, 2014

Macsen is 2!!!

Macsen was sick for his birthday poor little man. He needed some breathing treatments because he started wheezing and then to top everything off his toe nail came off which really hurt - the pic is the before shot with what his sister called his "button holes" the dr put in to relieve pressure right after he busted it. 
But Macsen still enjoyed smashing his cake and rubbing it in his hair. He loved riding in the remote controlled car his nana sent and reading all the Cars books. Thank you everyone who sent cards and gifts - his favorite movie Cars, a Charlie Brown he likes to hug. He loved his Cars pjs  too but he puked on them - poor guy is having a tough time keeping anything down. He vomited all day today - right after leaving our neighborhood on the way to the pediatrician, outside the pharmacy, all over our bed and right after getting his steroids - twice:( 
Needless to say I haven't had much time to sit down and really think about these 2 years we've had with Macsen - two years we never thought we would have. 2 incredible years filled with amazing memories - painful ones and miraculous ones. And yes sometimes I feel we have lost a lot during this time - years off my life, the hope of ever getting more than 3 hours sleep at a time, many friends, our savings, our innocence at the suffering so many go through on a daily basis but we have gained so much too. Friends and family that fight for Macsen with prayers and emails and calls of support. Other heart moms from around the world and their awesome advice - so much knowledge, understanding and acceptance just a Facebook post away. Our faith that miracles can and do happen every day. And of course our little miracle Bubs who chose us and we can't imagine living without. 
Happy Birthday my love. 

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