Appointment updates

 Appointments all done and everyone is encouraged with how well Macsen looks. He had an hour long echo (Daddy got him a sandwich in the middle bc he needed more calories ASAP!) EKG, pacemaker check, labs. His heart is squeezing better, his pacemaker looks good and they even talked about dropping his settings down so it would only kick in at 70 bpm but they are going to wait until we are back in a few months. Some amazing news is his BNP is.... drumroll please .....114!!!! That’s amazing news - especially considering earlier this year it was 3000 when his body was shutting down. It hasn’t been that low in over 2 years. His Dr thinks we can go to heart caths every 2 years if he continues on this course - he has been getting them every 6 months or sooner until now. We are upping his heart function meds a little.

When we came out of all those appts Children’s was giving away stuffed animals in the lobby and he picked this big pup - he will make a great pillow on the plane ride home in the morning. Lauren (pictured) coordinates their giving programs at BCH and she sweetly remembered him from previous events. The snow turned to sleet so walking around the city is out. We will just spend the evening at the Yawkey and fly home tomorrow morning. Quick trip but so worth it for the care we get here