Thursday, April 19, 2018

Sleeping at the stadium

Just a quick update on Mac. He seems to have a little more energy and is generally feeling better - I see his funny sweet side more often. We are still waiting for that second opinion from Boston. Apparently CHOP never sent the images from his cath and Mri so I had to request them - again.
These pictures are from his sisters track meet - it was very cold and windy which are hard on him and he got completely worn out - he fell asleep standing up lol. We also have to make sure he has sunscreen on and is covered with a hat bc his new meds make him a lot more light sensitive.

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