Thursday, February 22, 2018

Mac the Miracle man

Mac is finally asleep. He didn’t get his iv lasix dose until 9 pm 🙄 massive iv dose of diuretics + 1 hour past bedtime + already a terrible sleeper = probably a long night. Plus side he just has a telemetry box on - no beeping monitors in our room (they are being monitored somewhere else.) And hopefully he shouldn’t have any other interventions overnight. We’ve had several sweet friends offer to come spend time with the girls which is AWESOME. That way Aar and I can take care of M together and can both talk to the doctors (which makes all the decisions we face easier.)
I can feel everyone’s prayers - thank you ❤️Macsen is eating like a horse which has everyone stumped lol. They look at his heart and they want to list him for transplant right away - but they don’t know our boy here yet.

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