Tuesday, February 9, 2016

CHD week

Februrary 7-14 is Congenital Heart Defect awareness week. It's our week to try to help bring more attention to the serial killer called CHDs. Do you know someone in the US dies every 2.5 hours from a CHD and it is the #1killer of children under 1 here? Yet, how many commercials have you seen asking for donations to help find a cure? How many 5K races have you run for a cure or awareness for other diseases? Have you even seen one for CHD research? 2-3 million people are living with CHDs in the US right now - chances are you are one, or know several personally. Please consider donating to the Children's Heart Foundation - they fund much of the research being done to find a cure for our children. Just go to their research tab to see what promising new studies they are funding.
Macsen needs more breakthroughs to survive. His heart is not fixed - he still only has half a heart that works twice as hard to keep him alive. It only makes sense it will last at least 1/2 as long as a 4 ventricle heart. He needs this research, these doctors and scientists funded and motivated to find better ways to help his heart function. He needs them to find ways to grow him his own heart, from his own cells that his body won't be constantly fighting against like it would with a donor heart.

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