The first rule of baby fight club

Finally got a few more results from Macsen's November Cath and mri. He does have "pronounced" lymphatics around his neck - what this means for his next surgery I am not sure. I would like to talk to a lymph expert - either Dr.Dori at CHOP or Dr.Fishman @ Boston Childrens. My main worry is post Fontan complications like plastic bronchitis or protein losing entropy. Both incurable and both complications from lymph + post fontan circulation. Macsens CHOP card is calling us on Monday to discuss it. 

He had also started losing weight. He is down to 24 # from almost 26 :( I have been trying to get in touch with his GI for weeks when it became evident he was no longer gaining. His poop also looks weird which worries me. His Gi and I keep missing each other and Atlanta childrens  is a pain - I can never just call a direct number and leave a message for the dr. It's all through answering services

In happy news he is talking more - he says "wawa, Nonna, buhbuh (bubbles)" You have to give him the simple version and prompt him to use his mouth to make the sounds but when he's done it he raises both hands in the air and gives a huge smile. 

He got his first black eye this week - in the tub though Aaron likes to say "You should see the other baby." And "the first rule of baby fight club is you never  talk about baby fight club." Love that man .