Happy Holidays

Home!!

***I wrote this Dec 5 but it didn't upload

We made it home after Thanksgiving. The kids were thrilled to spend so much time with their cousins in Maryland. We were even able to celebrate K's birthday with them at a huge ice skating rink - so fun. On the way to Alabama they had a great time playing in all the snow at every pit stop in the mountains and were really very good for such a long drive.

Today we picked out a beautiful Christmas tree. While we were waiting for  Aaron to tie it to the top of the ban the kids and I went inside to see what decorations were left. Macsen fell in love with a train designed to ride around the tree. Lucky boy caught the eye of a manager who was just thinking he needed to clear the tracks to put up something else. He sold us the train for $5! Macsen was thrilled he got to carry the train out and I was thrilled I didn't have to make him put it back. I'll post pictures when we get everything up. 

Chugging along

We are still waiting to hear the results of Macsen's  cardiac MRI - waiting on test results is so awesom (said no one ever.) 

Macsen has kind of exploded lately though. According to my measuring system, which consists of sitting Macsen on the counter to see if his head touches the upper cabinets, he has grown half an inch. He is almost 26 lbs too! I am not sure if it is the appetite stimulant med he is on or the fortifier I am adding to his milk but something is working. He has been going through growing pains at night too - crying out and rubbing his legs. He wakes at least 5 times/night and I rub his legs or rock him. 

He is also trying to eat more real food though 99% of it still gets chewed up and spit out. Last night he chewed up 1/2 a meat ball and some rice noodles. This morning he swallowed about 1/2 a gogurt tube. Slow but progress. I still haven't turned in his paperwork for the intensive feeding clinic in Atlanta. I just don't know how we will swing that just yet with the girls in school and Aaron working. 

A company called Orgain that makes organic nutritional shakes mailed us 2 boxes of samples of their shakes - so generous- in the hopes that's Macsen would like them. 😔 Not looking good though he did take about 5 sips of the chocolate one. Vanilla was an immediate no way. 

Sigh. And after 2 years of running 4+ times per day I wore out my breast pump.  It started loosing suction so I opened it up and the inner membrane is popped. Not sure how that happened or if it just was its time to die but that stinks. Those things are not cheap and after 2 years I hate to buy a new one now. I have a really old one I am using now - grateful it is still running.