Today Miracle Mac is 8 months old! Holy moly that's crazy! This time last year we were reeling from our prenatal diagnoses and the horrible meeting at CHOP when they told us he probably would not survive the pregnancy. I remember crying so much and for so long my eyes were sore. Today I held him in my arms and we chased his sister K all around the house - the three of us cackling and laughing like crazy. He bounced in his bouncer until his little legs couldn't bounce anymore. He held his tiny hand out and ran it through the hose water as I watered our new blueberry bushes. He is our joy and I thank God for giving him to us.
This weekend we had to travel to Pensacola for another cardiology appointment. We camped near the beach and had a wonderful time swimming and gathering driftwood. Macsen sat in the waves at the beach for the first time and smiled the
Most beautiful baby grin. His appt went well and we were able to cut out his diuretic completely and cut his heart med dose in half. He is still only 13 lbs but is the happiest, busiest baby ever! Friday we go for a physical therapy evaluation to see if he'll need extra help learning to sit on his own and bear weight on his legs. 
Awww he's so cute!!!! Glad things are going well! :)
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