Macsen is now about 10 hours post op. His nurses are doing a great job keeping him comfortable for the most part but every half hour or so he has breakthrough pain. He whimpers, says "mama" "wawa" or "yaya" (what he calls his sisters.) he will open his eyes for a second but is so tired and still pretty drugged up on Dex and delaudid. They started Iv Tylenol as well. He is on milrinone to help his heart - but "just a splash." And IV fluids. He has had only a tiny bit of water and ice chips bc they don't want to overload his stomach. With the second surgery the redirected blood flow causes headaches but with this 3rd surgery the new blood flow to the lower part of his body can cause GI issues - vomiting, nausea, bloating etc. he is asking me for milk - hasn't had anything to "eat" for 16 hrs now- but they want to wait. So hard.
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