Day 1 is almost over

There is talk of starting IV lasix - pretty standard and M is starting to look puffy bc of all the Iv fluids. Ironically, bc his blood pressure is getting too low there is also talk of pushing more fluids- crazy post surgery dance to find the right balance. Always feels too much like a guessing game. Also talking about starting Zofran bc post Fontan kiddos need time to adjust to the extra blood flow to their lower half/gut and vomit a lot. That really hurts when your chest is held together with twisted bits of wire. So trying to keep him from vomiting. He wants milk but we have only been able to give him 1 oz at a time / his O2 drops and his alarms go off. Strange that it is set to alRm at 85 when its always been 75. Post Fontan-land has higher expectations I guess. I have been trying to wait for the rounding Drs before I go to sleep but a really sick little one down the hall has set them back. Plus Aaton can't sleep bedside / despite the fact that there is s couch and sleep chair in here. Annoying rule. We will switch out sleeping tonight as neither of us wants to leave him to go sleep at the Ronald McDonald house. Too far away if something goes wrong.