Day 4

Cold legs but mom forgot to bring my baby legs leg warmers so the nurses made some from surgery socks. 

Today was overall a better day. It started rough with very little sleep for M, a 4 am X-ray and we had some tough patches - another allergic reaction, this time to delaudid with lots and lots of itching including in his mouth and ears, back and especially his nose and eyes. Thankfully he already had Benadryl on board so I can't image what the reaction would have been without it. He had an awesome nap bc of the meds but woke up crazy cranky and unable to open his eyes - coupled with the itching - it was not fun for him. We took him for a wagon ride though which distracted him enough that we didn't have to give him a second antihistamine. Those knock him out and we REALLY need him to stay awake, at least some of the time, so he can start moving, doing PT, using his arms, and eating, sleeping all day is not good for him. His X-rays looked cloudy on both sides now - more fluid- so we have to make him get up. He was still scared to get moved and would tense up and hold his breath but it was better- he wasn't shaking like he was in shock too which is what he did yesterday.

He also had tons of GI pain - pain meds back you up. And we tried several things ranging from minor to drastic but nothing worked. His sweet nurse, hearing he sometimes needed a relaxing soak filled a basin and we sat him in it. The pictures are hilarious / big baby in a tiny tub with his feet dangling out but too graphic with his newly exposed incision and chest tube still in. It didn't work SO we moved on to plan B, C, and D which all didn't work. We had a stomach X-ray and a bladder echo which showed some very little. Our nurse didn't want to go home bc she wanted to help him. Maybe 30 min after she left he found some trlief. After that he ate a few goldfish and we got some smiles and silly dancing to the Nubble Guppies theme song which gets stuck in my head "Bubble bubble bubble. Guppy guppy guppies." So that was the hilight of the day. That, and seeing my sisters, brother in law, a niece and 2 nephews who helped distract M.