Discharged from the hospital!!!!

Macsen drank well all day in preparation for his 3 pm blood draw. They even let us leave the hospital while we waited for the results. We visited the beautiful koi pond we found 3 years ago when we first came to Philadelphia. 

Bloodwork came back perfect! So we are officially post Fontan! 11 days in the hospital this time - so much better than I ever imagined. I am so thankful for all the messages and prayers, the gifts to boost Macsen's spirit. So many people have been part of our journey and we are truly blessed by all of you.

 We have a follow up appointment on Monday so tonight we are enjoying some quiet time at the Ronald McDonald house.

Macsen tried to jump right in with the other kids in the playroom but quickly figured out he needs to take it easy. He tried to crawl but got stuck on all fours and I had to rescue him - oh yeah, my chest is held together with wires!  He'll get there and it will be tough to make him take it easy.