The Adventures of Macsen the Grayt

A Chronicle of Our Experience with HLHS

Monday, July 31, 2017

EPIC summer 2017 roadtrip

On our way









Posted by Alexandra7780 at 1:41 PM No comments:
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Welcome to our blog! We started it in May 2012 following our unborn son's HLHS diagnoses. He is currently 6, post open heart surgery #4 and is in heart failure. This blog gives us a place to reach out to other families, to have an outlet to vent and share, and to document our journey with our son who we call Macsen the Grayt.

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