Summer camping

Macsen has some appointments scheduled in Philadelphia and we are taking a week to get there. He will be having some exercise testing done in preparation for a special clinic at CHOP called the Single Ventricle Survivor-ship Program - or SVSP. We have a camping spot scheduled at Shenadoah! I am so excited to bring him and the girls there. When Macsen made it through his 2nd surgery and we were able to finally let out the breath we had been holding since his prenatal diagnosis we revisited the list of things we mourned we would never be able to do with all 3 of our children. Camping was near the top of the list. It is something we did a lot of when I was a kid and some of my most vivid memories are of the excitement I felt on family camping trips. I'm so very very excited to be able to bring my kids to one of the spots I remember visiting - and to be meeting up with my sisters on the trip!