We brought Macsen to Children's in Atlanta to discuss the consistent fluid problem he has in his ears. They want to do surgery to insert tubes to drain the fluid. He has failed several tympanic hearing tests and has visibly bulging ear drums but no recurrent ear infections. The worry is leaving fluid for more than 3 months will cause permanent damage. It's probably the most performed procedure on children these days - in fact I just drove myself nuts googling it. I am not sure tubes will help M. He hears well - follows directions, responds to all kinds of noises, hears his sisters come in the side door from all the way across the house... I worry the fluid is tied into the lymph fluid he carries around his face and neck/throat but the eNt assures me it's not connected. Eh. Not convinced . At the same time he is sedated they want to do a bronchoscopy to see if they can find any physical reason he is unable to swallow solids. We will have to be careful and work with a cardiac anesthetist - Macsen reacts strangely to anesthesia. He wakes up mid procedure and then takes 12 hrs to wake up when they redose him. He also has a crazy reaction to pain meds - trying to rub all the skin off his face like he's got insects crawling on him. That's why we have come to Atlanta for these simple procedures - bc if he needs extra support it will be there ready for him.
Little man still won't/can't eat. I can get him to take some bone broth I make. I call it his soup and he often wants it for breakfast. It's solid at room temp bc of all the gelatin so I know he is getting some protein and I add coconut oil or his favorite bacon grease for a little fat but any more than a super thin consistency and he won't eat it.
It wasn't all work though. We also were very fortunate to be treated to a show at Medieval Times. The girls yelled themselves hoarse cheering on their uncle the Green Knight. Thank you Jean Mathieu! We had a wonderful time watching you work and stealing your eggs. Our middle little wanted a baby chick so badly after visiting my brother's back yard coop she smuggled an egg into the van. We found it thankfully before it was forgotten and crushed by the water bottles, leap pads, stuffed animals and coloring books that always bury the back seat. And the kids all swam at the hotel which is a huge plus for them.
He's about 20 1/2 lbs now and is slowly outgrowing his 12 month stuff - yay! Never more happy then when I get to put some well worn shirt or onesie in the give away box because it is FINALLY too small.
He is getting more and more steady on his feet - taking 5 steps before sitting down. He is also getting more upset when I insist on carrying him places. For example today in Ikea because even though he's adorable scooting on his butt around the 432 sg ft apt he gets tired and will just lay his head down... On the floor - often accompanied Linus-style by his favorite blanket, making sure to mop up any grossness he missed with his hands and face. Sigh. Course that's only mildly
grosser than when he French kissed my brothers new puppy. Double sigh. Boys
