We have indeed been busy - enjoying our growing (albeit slowly) baby, our girls, our camper, our life.
We pulled the camper to Ft Pickens to camp for 2 nights before Macsen's Monday Cardiology appt last week. We all had a blast. Walking around the old fort, roasting marshmallows, finding shark eggs on the beach. So cool. He had an echo which looked good according to his cardiologist. He refused to give up a good blood pressure and his pulse ox was 75 which is about 10 pts less than preHemi surgery. He is still adjusting to his new circulation. He was 12 lbs so slowly gaining.
He now has a cold - the last of us to get it - it took me 2 weeks to shake it and his sister K still has it - lots of snot and a persistent cough. I have had to break out the Nose Frieda again which he hates but really works to get all that phlegm out so he can breathe. We are supposed to go to the Georgia RenFaire this weekend - a yearly trip we are thrilled to be able to do this year. But if he gets worse we'll have to postpone.
