Denise, at Children's Hospital of Philadelphia recommended this group to me - Sisters by Heart (http://www.sisters-by-heart.org/) They are HLHS moms who send care packages and offer tons of support to us newly diagnosed moms. I am very grateful to have found them. And even though this video makes me cry it tells me I can dare to hope that Macsen might be like one of these heart warriors - he might make it. I can let myself hope.
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