I found your blog through FB we have a friend in common who shared your blog. My daughter also has HLHS she is 8 years old and defying the odds. HLHS is a scary diagnosis and to complicate matters many of our HLHS kids have other defects that make survival so hard. I just want to give you hope that there is a chance and to keep up your amazing fight. Doctors will give you the worst scenario for many different reasons so keep the faith.
what a beautiful heart you have...thank you for doing this. I pray for Macsen's heart and your heart.. (Milk)
ReplyDeleteThis is just beautiful. prayers for you, Aaron, the girls and Macsen.
ReplyDeleteThis comment has been removed by the author.
ReplyDeleteI found your blog through FB we have a friend in common who shared your blog. My daughter also has HLHS she is 8 years old and defying the odds. HLHS is a scary diagnosis and to complicate matters many of our HLHS kids have other defects that make survival so hard. I just want to give you hope that there is a chance and to keep up your amazing fight. Doctors will give you the worst scenario for many different reasons so keep the faith.
ReplyDelete