Making plans and making memories

So we met again with the head of the heart failure department and tried to make a plan. As of now we will come back in 3 months for a cath and to see if the pacemaker is improving his function at all. Bc it may be too late for that we are also planning on doing the transplant evaluation at Boston Children's in the next month. I know the wait may be longer but honestly they are the only ones I trust anymore.
Listing here will mean Mac and I at the very least will have to move to Boston indefinitely. I will make this happen. We will work on finding a solution so the girls and Aaron can come too but for now I have to focus on getting him somewhere he will be safe ASAP. 
His Aunts are here and we are going to enjoy the next 24 hours in Boston - it's brutally cold so sight seeing may not be extensive. Macsen has requested a train ride and the art museum is free today so we will squeeze that in. Thank you everyone for your continued prayers