Holy Heck

We saw Mac's electro physiologist Dr today - Dr.Mah- and Macsen's pacemaker has not been functioning correctly . Probably for months!!! Dr.Mah was able to fix Macsen’s pacing so his pacemaker is now doing what he had it put in for in August - to get his heart to beat in synch - both sides squeezing at the same time. It was pacing like that in August and for a month we saw visible improvement in his function. That means that maybe now he will improve again!!!!! Key word is “maybe”though and it also means we need to figure out what the holy heck happened.It has not been pacing both sides for a while - one lead wasn’t firing at all so his heart has barely been getting any blood out to his body 😞 We don’t know exactly what happened but I noticed him declining in September. The Alabama pacemaker team changed some settings at that time. I don’t understand how monthly echos missed his heart was again beating out of synch. And I feel sick to think how much better he could be doing now if this had been caught months ago - I should have brought him to Boston for a 3 month check up instead of waiting for the scheduled 6 month 😞 
So now we start over - waiting to see if his heart function improves. This has set him back months but hopefully with time and prayers he will get better. 
It’s ironic that when we first saw his pacemaker dr here, Dr.Mah - I said “I’m hoping you can find something that is not working but is an easy fix” and boom! He delivered! We are setting up more frequent visits to see him for all Mac’s future pacemaker monitoring. 
A few more appointments today - thank you everyone for continuing to pray for Mackie