Another appointment in Birmingham in the books before our big appointments in Boston in a few weeks.
MAc's local cardiologist said his heart function wasn't any better (but not worse) nut jis labs are awful. BNP over 3000 now. Kidneys showing further strain. I hada hard talk and we will have to list him for transplant based on all this decline :( I do want to see what Boston says before we do that and talk to them about our options for listing. They say alabama hasa goodtransplant program and from what I've seen of the kids I've met it does look good.
Mac continues to go to school full time but he is so tired, and cranky bc he's not feeling great, and he's not eating well. Such a change from how he was doing after the pacemaker was placed.I really thought it was working but not now.
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