So there is a pretty good chance, barring any unexpected downturn, Mac will be discharged tomorrow! We have a 9 am Friday appointment but hope to come home soon after. We both can’t wait to be home but I am afraid to leave lol. Such a weird juxtaposition if feelings. Mac had some great moments today and some really low moments when he was very tired and said he wasn’t feeling good. It’s going to be a big adjustment off the monitors, no more daily labs to see his trends -he better? Worse? Is he getting fluid overloaded or too dehydrated? Does he need potassium and that’s why he’s so tired again? It’s wonderful and horrible being off the monitors when you worry constantly that he might be getting worse. We don’t know how much time - if any- this pacemaker will give Mac. It’s not like after his other surgeries where there was a lot of research showing the surgery would help him live a longer and better life. We just don’t have that reassurance this time. And after that emergency situation in Maryland I am just so afraid to leave
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