I talked to Dr.Blume Director of the Heart transplant and heart failure management clinic at BCH today and she gave me so much info I am amazed, and embarrassed, I didn’t know.
Mac is on 3 diuretics but still holding onto fluid. She said bc he is in heart failure and his heart is not putting out enough volume his body is sending out a hormone ADH telling him “drink, drink, drink! We need more volume!” So he does - all day - which his other centers have said was good. “Dehydration is bad” is what we always heard. But she says the extra volume is too much for his overworked heart, it’s accumulating in his tissues and we need to restrict fluids. She also guessed his favorite food - salt. His favorites are bacon, popcorn and boiled peanuts, avocado but only with salt, on and on that make him drink even more. So he drinks more and his heart is overwhelmed even more. We have to start weighing him everyday and she wants to see him lose weight - water weight. I am happy to have some input that may help him - his bnp is not going down- but the thought of taking away most of the only foods he eats and telling him he can’t drink when he’s thirsty 😳😳😳 It’s going to be tough. But we will do everything to help him feel better even if he hates us for it. The dr needed a few more days to consult with another doctor but hopefully vet soon we will have a plan for the next few months.
No comments:
Post a Comment