So sad to be right

Today we went to Pensacola to see Macsen's local cardiologist. I am so upset CHOP cancelled his appointments - I knew something was wrong with Macsen. His card says his heart function does look worse compared to his echo she performed earlier this year. He had to have blood drawn and his  BNP is also elevated. :( She put him on a medicine called Digoxin. He's never been on it before and I pray it helps

Holding up his hurt arm after the blood draw - still terrifying for M