"Wa wop! Geen go!" He says to his cars, sending them racing across the floor. Red stop, green go! So amazing to me when 2 months ago he couldn't string 2 words together. Now, I hear him trying to imitate our words and he picks up a new one almost every day.I attribute it to the increased oxygen he's getting and maybe the new supplements. In addition to the CoQ 10, multi vitamins, elderberry, magnesium, vitamins d/K2, probiotics and iron I restarted his fermented cod liver oil and another food based powder to add to his milk called IQd. I have also been diffusing frankincense bc I read new studies have found it helps with recovery from brain injuries in addition to stimulating production of human growth hormone. Macsen is still not up to his presurgery weight of 30 lbs and hasn't grown taller either. I think another trip to the endocrinologist is in our near future.
He is still not eating food or sleeping more than 2 hours at night which is a big bummer. A really big one. I can't remember a time I wasn't functioning on a few hours of sleep. I long to be productive ... if he was waking to goof off I could put him in his own room to do that but bc he wakes crying - rubbing his legs, or feet, or bc he will finally drink some milk and take in some calories- last night he drank 3 bottles and needed 2 diaper changes in addition to sporadically crying that his legs hurt- I can't just let him cry himself to sleep in another room...
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